I’ve been living with neurocardiogenic syncope (NCS) intermittently since middle school and have been undergoing cardiological tests to determine whether the symptoms I’ve more recently developed are inappropriate sinus tachycardia (IST) after ruling out postural orthostatic tachycardia syndrome (POTS). All of this to say—I have quite a bit of experience dealing with a dysfunctional autonomic nervous system. So what’s in my dysautonomia survival kit?
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Liquid IV is the MVP of my dysautonomia survival kit! This powdered electrolyte mix uses Cellular Transport Technology (CTT) and assorted vitamins to get you well-hydrated quickly and efficiently. I’ll admit—it isn’t the most budget-friendly electrolyte option. But I’ve found that Liquid IV genuinely seems to work best for me compared to other brands, so I make that investment whenever I’m able.
My favorite flavors:
Note: if Liquid IV is out of your budget, I’ve found that Aldi’s dupe is fairly close!
Portable Fans
Heat intolerance is consistently one of my most frustrating symptoms of dysautonomia lately, and my collection of portable fans is such a lifesaver! I have a handy neck fan that’s perfect for days at home and a small handheld fan like this one for on the go.
Blog Post: Staying Cool in Summertime As a Spoonie
I was surprised to find that my medical team actually takes the data from my Apple Watch pretty seriously (though not a substitute for proper medical testing, of course). I get a lot of reassurance from knowing it’s tracking my heart rate throughout the day, and consequently find myself checking less frequently. It’s also been nice to be alerted to heart rate spikes and details like walking unsteadiness. I have an older model that’s held up pretty well!
I try to use an electrolyte powder every day but realistically I end up skipping it every once in a while. I started adding these electrolyte capsules to my daily meds as a sort of safety neck and it makes a remarkable difference!
Compression gear is highly recommended for a lot of us with ANS dysfunction and it’s been a key part of my personal dysautonomia survival kit. Compression socks are especially helpful. My favorites are by Wellow with VIM & VIGR as a close second, but I’ve also used some generic compression socks from Amazon that worked well.
I also love Fabletics’ compression leggings (though they’re a bit of an investment piece) have had some good results using a corset, too (I’m overdue for an upgrade on mine!). Be sure to check reviews for sizing context to get the best fit!
This essential oil roller isn’t specifically meant for dysautonomia but I’ve found it to be super helpful for vertigo, motion sickness, and presyncope. The Vertigo Ease roll-on is by Basic Vigor, who are the geniuses behind my favorite migraine roller, too. It contains lavender, peppermint, frankincense, ginger, and sweet orange essential oils for a blend that helps me pretty consistently.
SaltStick electrolyte FastChews are arguably the most in case of emergency-coded items in my dysautonomia survival kit. If I start to feel a little off—I usually refer to it as feeling “woopy”—two of these chews are a quick and easy way to help ward off any worsening symptoms. They have a bit of a chalky texture but I find them a lot more bearable than Tums, for instance!
What’s in your dysautonomia survival kit? Let us know in the comments!
